The second year of chemo was "easier". We only had to go to clinic once a month. Henry had a five day course of steroids once a month, and those weeks were bad. He would cry and eat. He loved macaroni and cheese, especially Sponge Bob macaroni, and pirates booty. One month, he loved butter, he just wanted to eat cubes of butter. He would get such a puffy face, but once that week was over, our "happy Henry" would return, and we would continue to play.
We enjoyed the fresh spring air.
He loved spaghetti, and you two would make "mop faces" at each other.
And of course, we always went to the beach.
Henry was eating so well, that in April we took out his PEG tube. He no longer needed a tube into his stomach to feed him, since he was finally wanting to eat. The second year of chemo was less intense, his hair started to grow back.
This picture was after a lumbar puncture. Every three months, he would go in for chemotherapy into his spine. I always thought that if it were me getting this, I would go home and sleep in bed the rest of the day... not Henry. As soon as he woke up, he wanted to eat and play. So, we followed his lead and played. He never really minded those days.
My three favorite boys reading about airplanes.
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